Bjorn Formosa made national headlines when he donated €100,000 on live television to fund research into the degenerative disease that afflicts him. 

Ten months later, popular television show Xarabank is again hoping to help Mr Formosa - this time to achieve his dream of opening a home for people living with ALS. 

I want to live a little longer to see this dream of mine become a reality. Then I can go in peace.- Bjorn Formosa

ALS is a degenerative disease that affects nerve cells in the brain and spinal cord. As the disease progresses, the body’s motor neurones stop sending signals to the muscles until the muscles start to die, eventually leading to paralysis. There is no known cure.

The disease's paralysing effect means homes for ALS patients must be specially equipped to allow residents to control every aspect of daily life using just their eyes. Anything from lifts, doors, computers and television must be adapted. 

READ: €440,000 raised for ALS research

Mr Formosa will star on tonight's edition of Xarabank in a bid to raise funds for the home.  

Bjorn and his wife Maria. Photo: Stefan Stafrace

"I want to live a little longer to see this dream of mine become a reality. Then I can go in peace," he said. 

The appearance is likely to be the last time Mr Formosa speaks on national television, as an upcoming operation is expected to rob him of his voice. 

The 30-year-old IT guru already struggles to speak and his upcoming operation will force him into complete silence. 

"The thought that he won't be able to speak anymore makes me too sad for words. I can't imagine him without a voice," his wife Maria said. 

Donation lines have been opened and pledges can be made by phone or SMS. Anyone donating €300 or more will get a custom tile in the home featuring their name or that of their business. 

To donate €300 or more 21 249 200 
To donate €15 call 5170 2016
To donate €25 call 5180 2018
Send an SMS to 50619271 to donate €11.65